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February 28th is Rare Disease Day

RDDay

 

Rare Disease Day is an international annual campaign to raise awareness among the general public regarding the world’s rarest diseases and how they impact patients’ lives. According to www.rarediseaseday.org, Rare Disease Day “is also designed for patients and patient representatives, as well as politicians, public authorities, policy-makers, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases.”

 

 

 

IVUmed volunteer physicians and nurses often assist in the treatment of especially difficult or rare cases while training and serving in low-resource environments worldwide. One disease that is extremely rare in the United States but seen more often in tropical climates is lymphatic filariasis (LF), commonly known as elephantiasis, a painful and disfiguring disease. LF is most often acquired in childhood, though its visible manifestations occur later in life, causing temporary or permanent disability.

 

 

Rare Disease Day was first launched by EURORDIS and its Council of National Alliances in 2008 and has since hosted over 1000 events worldwide, with over 70 countries participating in the 2013 events. Check out the 2014 Rare Disease Day events list here for awareness events in your area.

 

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IVUmed is committed to making quality urological care available to people worldwide.